7th Annual Believing for Bryleigh Benefit Concert
Add to Calendar
The 7th annual Believing for Bryleigh Benefit Concert will bring some of the best Texas Country Music Artists to River Road Ice House for an all afternoon concert series on October 13, 2019. This year our partners and guests can expect to experience an amazing line up of authentic Texas Country Music, delicious food from local food trucks, Kid's Activities and exciting Auction Items! This benefit concert will be a family fun event with a powerful purpose!
You can be a part of this event by becoming a partner, donating an auction item, or by buying tickets for you and your family to attend!
All proceeds raised from this concert will go towards supporting the Believing for Bryleigh Foundation, a non-profit organization dedicated to providing funding for research and support to families all over the country living with metachromatic leukodystrophy (MLD), as well as other local non-profit organizaitons supporting children with disabilities or developmental delays.
Sponsorship opportunities available - Call Kaprice Shullanberger: 210.393.5570 for more details.
*Tickets to the Believing for Bryleigh Benefit Concert are non-refundable.
About Believing for Bryleigh
Metachromatic leukodystrophy (MLD) is a genetic disorder that affects nerves, muscles, other organs, and behavior. It slowly gets worse over time.
In the late infantile form, which is the most common form of MLD (50-60%), affected children begin having difficulty walking after the first year of life, usually at 15–24 months. Symptoms include muscle wasting and weakness, muscle rigidity, developmental delays, progressive loss of vision leading to blindness, convulsions, impaired swallowing, paralysis, and dementia. Children may become comatose. Untreated, most children with this form of MLD die by age 5, often much sooner.
There is currently no treatment or cure for MLD. Late infantile patients displaying symptoms receive treatment limited to pain and symptom management.
Bryleigh was experiencing a delay in walking, that doctors attributed to a heart condition, and therefore underwent open heart surgery in 2012, before the MLD diagnosis was made. When her condition did not improve following surgery, she underwent months of genetic testing and brain scans before the MLD diagnosis was made.
We want to spread awareness about this rare, horrible neurodegenerative disease.....but we are still BELIEVING and continue to PRAY for a miracle.
River Road Ice House
1791 Hueco Springs Loop Rd
New Braunfels, TX, 78132